Parent Perspectives of an Occupational Therapy Telehealth Intervention

Anna Wallisch, Lauren Little, Ellen Pope, Winnie Dunn

Abstract


Occupational therapy services delivered via telehealth can support families of young children with autism spectrum disorders (ASD) in everyday routines such as mealtime, bedtime, and play. The aim of the current study was to understand the lived experiences of parents who participated in a 12-week, telehealth-delivered occupational therapy intervention (Occupation-Based Coaching). We used semi-structured interviews and subsequent thematic content analysis to understand how parents perceived the mechanism of service delivery (i.e., videoconferencing) and the content of the intervention. Themes that emerged from the data included Compatibility with Everyday Life, Collaborative Relationship, and Parent Empowerment. Parents expressed how telehealth fit within their daily lives, how telehealth supported a collaborative relationship with the occupational therapist, and how the content of the intervention built a sense of empowerment.


Keywords


Autism Spectrum Disorder; Coaching; Occupational Therapy

References


American Occupational Therapy Association (2010). AOTA Practice Advisory on Occupational Therapy in Early Intervention.

American Occupational Therapy Association. (2018). Telehealth in occupational therapy. American Journal of Occupational Therapy, 72(Suppl. 2), 7212410059. doi: 10.5014/ajot.2018.72S219

Ashburner, J., Vickerstaff, S., Beetge, J., & Copley, J. (2016). Remote versus face-to-face delivery of early intervention programs for children with autism spectrum disorders: Perceptions of rural families and service providers. Research in Autism Spectrum Disorders, 23, 1-14.

Benham, S., & Gibbs, V. (2017). Exploration of the effects of telerehabilitation in a school-based setting for at-risk youth. International Journal of Telerehabilitation, 9(1), 39-46. doi:10.5195/ijt.2017.6215

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101. doi: 10.1191/1478088706qp063oa.

Carlson, G., Armitstead, C., Rodger, S., & Liddle, G. (2010). Parents’ experiences of the provision of community-based family support and therapy services utilizing the strengths approach and natural learning environments. Journal of Applied Research in Intellectual Disabilities, 23, 560–572. doi: 10.1111/j.1468-3148.2010.00562.x

Creswell, J. W., Fetters, M. D., Plano Clark, V. L., & Morales, A. (2009). Mixed methods intervention trials. Mixed Methods Research for Nursing and the Health Sciences, 161-180.

Cason, J. (2009). A pilot telerehabilitation program: Delivering early intervention services to rural families. International Journal of Telerehabilitation, 1(1), 29-38. doi:10.5195/ijt.2009.6007

Cason, J. (2011). Telerehabilitation: An adjunct service delivery model for early intervention services. International Journal of Telerehabilitation, 3(1), 19-30. doi:10.5195/ijt.2011.6071

Covert, L. T., Slevin, J. T., & Hatterman, J. (2018). The effect of telerehabilitation on missed appointment rates. International Journal of Telerehabilitation, 10(2), 65–72. doi:10.5195/IJT.2018.6258

Dawson, G. (2008). Early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder. Development and Psychopathology, 20, 775–803. doi: 10.1017/S0954579408000370

Division for Early Childhood. (2014). DEC recommended practices in early intervention/early childhood special education 2014. Retrieved from http://www.dec-sped.org/recommendedpractices

Dunn, W., Little, L. M., Pope, E., & Wallisch, A. (2017). Establishing fidelity of occupational performance coaching. Occupational Therapy Journal of Research, 38, 96-104. doi: 10.1177/1539449217724755

Estes, A., Vismara, L., Mercado, C., Fitzpatrick, A., Elder, L., Greenson, J., . . . Young, G. (2014). The impact of parent-delivered intervention on parents of very young children with autism. Journal of Autism and Developmental Disorders, 44, 353-365. doi: 10.1007/s10803-013-1874-z

Foster, L., Dunn, W., & Lawson, L.M. (2013). Coaching mothers of children with autism: A qualitative study for occupational therapy practice. Physical & Occupational Therapy in Pediatrics, 33, 253–263. doi: 10.3109/01942638.2012.747581

Graham, F., Rodger, S., & Ziviani, J. (2014) Mothers’ experiences of engaging in Occupational Performance Coaching. British Journal of Occupational Therapy, 77, 189–197.

Interagency Autism Coordinating Committee. (2012). Strategic Plan for Autism Spectrum Disorder Research. Retrieved from: https://iacc.hhs.gov/publications/strategic-plan/2012/

Jones, T. L., & Prinz, R. J. (2005). Potential roles of parental self-efficacy in parent and child adjustment: A review. Clinical Psychology Review, 25, 341-363. doi: 10.1016/j.cpr.2004.12.004

Karst, J. S., & Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15, 247-277. doi:10.1007/s10567-012-0119-6

Law, M., Hanna, S., King, G., Hurley, P., King, S., Kertoy, M., & Rosenbaum, P. (2003). Factors affecting family-centred service delivery for children with disabilities. Child, 29, 357–366. doi: 10.1046/j.1365-2214.2003.00351.x

Lindgren, S., Wacker, D., Suess, A., Schieltz, K., Pelzel, K., Kopelman, T., ... & Waldron, D. (2016). Telehealth and autism: Treating challenging behavior at lower cost. Pediatrics, 137(Suppl. 2), S167-S175.

Little, L. M., Pope, E., Wallisch, A., & Dunn, W. (2018a). Occupation-based coaching by means of telehealth for families of young children with autism spectrum disorder. American Journal of Occupational Therapy, 72, 7202205020. doi: 10.5014/ajot.2018.024786

Little, L. M., Wallisch, A., Pope, E., & Dunn, W. (2018b). Acceptability and cost comparsion of a telehealth intervention for families of children with autism. Infants & Young Children, 31, 275-286. doi: 10.1097/IYC.0000000000000126.

McConachie, H., Randle, V., Hammal, D., & Le Couteur, A. (2005). A controlled trial of a training course for parents of children with suspected autism spectrum disorder. Journal of Pediatrics, 147, 335-340. doi: 10.1016/j.jpeds.2005.03.056

Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38, 1092-1103. doi: 10.1007/s10803-007-0497-7

Pickard, K. E., Wainer, A. L., Bailey, K. M., & Ingersoll, B. R. (2016). A mixed-method evaluation of the feasibility and acceptability of a telehealth-based parent-mediated intervention for children with autism spectrum disorder. Autism, 20, 845-855. doi: 10.1177/1362361315614496

Rush, D. D., & Sheldon, M. L. (2011). The early childhood coaching handbook. Baltimore: Paul H. Brooks.

Steiner, A. M. (2011). A strength-based approach to parent education for children with autism. Journal of Positive Behavior Interventions, 13, 178–190. doi: 10.1177/1098300710384134

Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19, 349–357. doi: 10.1093/intqhc/mzm042

Zylstra, S. E. (2013). Evidence for the use of telehealth in pediatric occupational therapy. Journal of Occupational Therapy, Schools, & Early Intervention, 6, 326-355. doi:10.1080/19411243.2013.860765




DOI: https://doi.org/10.5195/ijt.2019.6274

  

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