Caregiver Satisfaction with a Video Telehealth Home Safety Evaluation for Dementia

Authors

  • Megan E. Gately VA Bedford Health Care System https://orcid.org/0000-0002-0319-8046
  • Linda Tickle-Degnen Tufts University
  • Scott A. Trudeau American Occupational Therapy Association
  • Nathan Ward Tufts University
  • Keren Ladin Tufts University
  • Lauren R. Moo VA Bedford Health Care System

DOI:

https://doi.org/10.5195/ijt.2020.6337

Keywords:

Caregivers, Dementia, Safety, Telemedicine

Abstract

Family caregivers are vital to telehealth-delivered dementia care. The objective of this mixed methods descriptive study conducted in the VA Bedford Healthcare System was to examine caregiver satisfaction with a video telehealth dementia home safety occupational therapy evaluation. Ten caregivers of Veterans with dementia participated. Ratings of caregiver satisfaction, measured by nine Likert scale items including ability to see and hear, were examined in relation to person and visit-related contextual factors extracted from RA field notes, to develop an in-depth understanding of caregiver experience. Person factors included caregiver age and gender and Veteran cognitive status. Visit-related contextual factors included occurrence  of technical glitches. Caregiver visit satisfaction was overall positive, with exceptions related to technological glitches and the presence of the person with dementia during the visit. Veteran cognitive status appeared to influence caregiver satisfaction. Implications of the study are that proactively addressing technical glitches and incorporating dementia stage-specific approaches may optimize caregivers’ telehealth experience.

 

  

References

Astell, A. J., Bouranis, N., Hoey, J., Lindauer, A., Mihailidis, A., Nugent, C., Robillard, J. M. (2019) Technology and dementia: The future is now. Dementia and Geriatric Cognitive Disorders, 47(3), 131-139. https://doi.org/10.1159/000497800

Centers for Disease Control (CDC). (2019). Stopping Elderly Accidents, Death and Injury (STEADI) Algorithm. https://www.cdc.gov/steadi/pdf/STEADI-Algorithm-508.pdf

Folstein, M. F., Folstein, S.E., McHugh, P.R. (1975). "Mini-mental state." A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189-198.

Gately, M. E., Trudeau, S. A., & Moo, L. R. (2019). In-home video telehealth for dementia management: Implications for rehabilitation. Current Geriatrics Reports, 8(3), 239-249. https://doi.org/10.1016/0022-3956(75)90026-6

Gately, M. E., Trudeau, S. A., & Moo, L. R. (2020). Feasibility of telehealth-delivered home safety evaluations for caregivers of clients with dementia. OTJR: Occupation, Participation and Health., 40(1), 42-49. https://doi.org/10.1177/1539449219859935

Harris, P. B. (2002). The person with Alzheimer's disease: Pathways to understanding the experience. The Johns Hopkins University Press. http://works.bepress.com/phyllis_harris/5/

Harris, P. B. (2008). Another wrinkle in the debate about successful aging: The undervalued concept of resilience and the lived experience of dementia. International Journal of Aging and Human Development, 67(1), 43-61. https://doi.org/ 10.2190/AG.67.1.c

Hercegovac, S., Kernot, J., & Stanley, M. (2020). How qualitative case study methodology informs occupational therapy practice: A scoping teview. OTJR: Occupation, Participation and Health., 40(1), 6-16. https://doi.org/10.1177/1539449219850123

Horvath, K. J., Hurley, A. C., Duffy, M. E., Gauthier, M., Harvey, R. M., Trudeau, S. A., Cipolloni, P. B., & Smith, S. J. (2005). Caregiver competence to prevent home injury to the care recipient with dementia. Rehabilitation Nursing, 30(5), 189-196. https://doi.org/10.1002/j.2048-7940.2005.tb00109.x

Horvath, K. J., Trudeau, S. A., Rudolph, J. L., Trudeau, P. A., Duffy, M. E., & Berlowitz, D. (2013). Clinical trial of a home safety toolkit for Alzheimer's disease. International Journal of Alzheimer’s Disease, 913606. https://doi.org/10.1155/2013/913606

Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277-1288. https://doi.org/10.1177%2F1049732305276687

Kerssens, C., Kumar, R., Adams, A. E., Knott, C. C., Matalenas, L., Sanford, J. A., & Rogers, W. A. (2015). Personalized technology to support older adults with and without cognitive impairment living at home. American Journal of Alzheimer's Disease and Other Dementias, 30(1), 85-97. https://doi.org/10.1177/1533317514568338

Law, M., Cooper, B., Strong, S., Stewart, D., Rigby, P., & Letts, L. (1996). The Person-Environment-Occupation Model: A transactive approach to occupational performance. Canadian Journal of Occupational Therapy, 63(1), 9-23. https://doi.org/10.1177/000841749606300103

Lee, C., & Coughlin, J. F. (2015). PERSPECTIVE: Older adults' adoption of technology: An integrated approach to identifying determinants and barriers. Journal of Product Innovation Management, 32(5), 747-759. https://doi.org/10.1111/jpim.12176

Lin, V., Zhang, X., & Dixon, P. (2015). Occupational therapy workforce in the United States: Forecasting nationwide shortages. Physical Medicine and Rehabilitation 7(9), 946-954. https://doi.org/10.1016/j.pmrj.2015.02.012

Lindauer, A., Seelye, A., Lyons, B., Dodge, H. H., Mattek, N., Mincks, K., Kaye, J., & Erten-Lyons, D. (2017). Dementia care comes home: Patient and caregiver assessment via telemedicine. Gerontologist, 57(5), e85-e93. https://doi.org/10.1093/geront/gnw206

Maggi, P., de Almeida Mello, J., Delye, S., Ces, S., Macq, J., Gosset, C., & Declercq, A. (2018). Fall determinants and home modifications by occupational therapists to prevent falls. Canadian Journal of Occupational Therapy, 85(1), 79-87. https://doi/10.1177/0008417417714284.

Meiland, F., Innes, A., Mountain, G., Robinson, L., van der Roest, H., Garcia-Casal, J. A., Gove, D., Thyrian, J. R., Evans, S., Droes, R. M., Kelly, F., Kurz, A., Casey, D., Szczesniak, D., Dening, T., Craven, M. P., Span, M., Felzmann, H., Tsolaki, M., & Franco-Martin, M. (2017). Technologies to support community-dwelling persons with dementia: A position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics. JMIR Rehabilitation and Assistive Technologies, 4(1), e1. https://doi.org/10.2196/rehab.6376

Moo, L. R., Jafri, Z., & Morin, P. J. (2014). Home-based video telehealth for veterans with dementia. Federal Practitioner, 31(12), 36-38. https://www.ncbi.nlm.nih.gov/pubmed/29398887

Pighills, A., Ballinger, C., Pickering, R., & Chari, S. (2016). A critical review of the effectiveness of environmental assessment and modification in the prevention of falls amongst community dwelling older people. British Journal of Occupational Therapy, 79(3), 133-143. https://doi.org/10.1177%2F0308022615600181

Renda M, L. J. (2018). Feasibility and effectiveness of telehealth occupational therapy home modification interventions. International Journal of Telerehabilitation, 10(1), 3-14. https://doi.org/10.5195/ijt.2018.6244

Sanford, J. A., Hoenig, H., Griffiths, P. C., Butterfield, T., Richardson, P., & Hargraves, K. (2009). A comparison of televideo and traditional in-home rehabilitation in mobility impaired older adults. Physical & Occupational Therapy in Geriatrics, 25(3), 1-18. https://doi.org/10.1080/J148v25n03_01

Sriram, V., Jenkinson, C., & Peters, M. (2019). Informal carers' experience of assistive technology use in dementia care at home: A systematic review. BMC Geriatrics, 19(1), 160. https://doi.org/10.1186/s12877-019-1169-0

Stake, R. E. (1995). The art of case study research. SAGE Publishers.

Struckmeyer, L. R., & Pickens, N. D. (2016). Home modifications for people with Alzheimer’s disease: A scoping review. American Journal of Occupational Therapy, 70, 7001270020. https://doi.org/10.5014/ajot.2015.016089

Vaportzis, E., Clausen, M. G., & Gow, A. J. (2017). Older adults perceptions of technology and barriers to interacting with tablet computers: A focus group study. Frontiers in Psychology, 8, 1687. https://doi.org/10.3389/fpsyg.2017.01687

Waller, A., Dilworth, S., Mansfield, E., & Sanson-Fisher, R. (2017). Computer and telephone delivered interventions to support caregivers of people with dementia: A systematic review of research output and quality. BMC Geriatrics, 17(1), 265. https://doi.org/10.1186/s12877-017-0654-6

Wang, S., Bolling, K., Mao, W., Reichstadt, J., Jeste, D., Kim, H. C., & Nebeker, C. (2019). Technology to support aging in place: Older adults' perspectives. Healthcare (Basel), 7(2). https://doi.org/10.3390/healthcare7020060

Worksheet for making the home safer for a person with memory loss. (2019, March). A Guide for Families: Keeping the Person with Memory Loss Safer at Home. https://www.va.gov/Geriatrics/docs/HOME_SAFETY_BOOKLET_March_2019.pdf

Published

2020-12-08

How to Cite

Gately, M. E., Tickle-Degnen, L., Trudeau, S. A., Ward, N., Ladin, K., & Moo, L. R. (2020). Caregiver Satisfaction with a Video Telehealth Home Safety Evaluation for Dementia. International Journal of Telerehabilitation, 12(2), 35–42. https://doi.org/10.5195/ijt.2020.6337

Issue

Section

Clinical Research